Vanessa: Hi everyone, my name is Vanessa Pike-Russell. I’m a 50-year-old woman from Australia. I have a very rare disease called congenital panhypopituitarism. [Listen Now] [1] I was born with growth hormone and adrenal insufficiency, chronic fatigue and many other health problems I’ll list later I wasn’t diagnosed until the age of 13. My…
I’m excited to say I am finally back on growth hormone injections once more. I was born with Panhypopituitarism which includes growth hormone insufficiency. I was put on growth hormone injections when I was 16 and I was taken off it when I was 19 because I missed an appointment with my endocrinologist for reporting…
I am Samriddhi Paliwal and I suffer from Congenital Panhypopituitarism.(CPHP) Congenital means by birth. Pan means all. Hypo means less or absent. So panhypopituitarism means less or no production of the anterior and posterior pituitary hormones. The pituitary hormones are: thyroid hormone, reproductive(sex) hormones, cortisol (ACTH) hormone, growth hormone, prolactin and oxytocin, mainly. I was…
Hello. My name is Vanessa Pike-Russell and this is my Congenital Panhypopituitarism Diagnosis journey. I was born with Panhypopituitarism on 17th October 1971. I was induced as I was two weeks overdue and removed via cesarian, with forceps. I presented with severe Talipes Equinovarus (also known as clubfeet) in both feet. I had a…
ADRENAL INSUFFICIENCY AWARENESS MONTH APRIL 7, 2019 / BY SUNNY AMMERMAN (A.K.A. INSOMNIADOODLES) Adrenal Insufficiency United has named April as Adrenal Insufficiency Awareness month. In honor of that, I’ll share some facts about my condition, Secondary Adrenal Insufficiency (SAI): 🔹My SAI was caused by my congenital panhypopituitarism. Basically, my pituitary gland does not function sufficiently enough…
Panhypopituitarism 101: The Basics of PHP video Shared with permission by Sunny Ammerman (Insomnia Doodles) “This video explains the basics of Panhypopituitarism (symptoms, diagnosis, treatment, etc.) in a simple, easy-to-follow (and fun to make) presentation. I hope it’s helpful! ^^ Feel free to check out my other PHP videos! Resource links: Pituitary gland: http://en.wikipedia.org/wiki/Pituitar… Panhypopituitarism:…